Why should I submit medical records to the CFR?
- Your medical records include a wealth of data that is relevant to researchers, scientists and pharmaceutical companies interested in SLSMD diseases. Medical records submitted to the CFR can help to better understand the complete natural history of SLSMD diseases and enable researchers to pursue novel avenues towards a cure.
- You can also use the CFR to securely store records, retrievable by you at any time from anywhere with an Internet connect.
- Uploading or linking your medical records is entirely voluntary and not required to register in the CFR.