What is the Champ Foundation Research Repository (biospecimen repository)?

The Champ Foundation Research Repository is a biological sample collection program housed at Boston Children's Hospital. Biospecimens are very important for future experiments and research to help find a treatment and a cure for SLSMD disorders.

By signing the informed consent, you provide permission for the CFR to share your contact information (name, mailing address, email and phone number) with the Boston Children's Hospital research staff. The research staff will contact you for next steps to donate biospecimens.