What is the Champ Foundation Registry (CFR)?

Title: 
What is the Champ Foundation Registry (CFR)?

The CFR is a research study to investigate single large-scale mitochondrial DNA deletion (SLSMD) disorders, such as Pearson syndrome, Kearns-Sayre syndrome, and CPEO.  To our knowledge, it is the only registry in the world that aims to gather data specifically on individuals affected by SLSMD disorders.